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Our Aims & Activities

The New Zealand Support Group is affiliated to the other groups throughout the world and our aims are those of the worldwide group:

Dedicated to improving diagnosis, treatment, and quality of life for VHL Patients and their families.

Caring…
An international network of family support groups

Sharing…
In person, on the phone, on the Internet, and through the VHL Family Forum

Learning…
From each other and from our physicians and medical teams…

Educating…
Ourselves, the medical community, and the general public

Funding…
Research towards better ways of managing VHL and similar tumour conditions for everyone.

Our Activities

Our local group is here to support patients and families throughout New Zealand by providing personal support and advice on matters regarding VHL, both over the telephone and through email. We can obtain advice for individuals from the experts available in New Zealand and overseas and/or provide suggestions as to where they might get advice or a second opinion if required. We very much believe in respecting the privacy of individual patients and families and are there to help as and when required.